Last week we had another appointment with our Audiologist, Kerri. I have a feeling we're going to be getting pretty close with her so it's a good thing that I like her. Yesterday's appointment was to repeat the three tests that were done when we were given the diagnosis of profoundly deaf, and they confirmed the initial results. Additionally though, she conducted a test called the ASSR (Auditory steady state response ). With this test we were actually able to find that Calvin has a tiny amount of hearing in his right ear. This is great news! Any hearing at all is better than none. It isn't enough to help with speech or language, nor is it enough that he can hear us, but it's enough to help with stimulaing his nerves in preparation for an implant.
Yesterday we were also able to make the molds for what will become the inner part of his hearing aids. I didn't know how it was done, and thought it was interesting, as well as amazing that there is technology now that can help my baby. We selected his first pair of "ears" and they'll be here on the 19th. We're used to hearing aids as Rob wears them in both ears, but Calvins are going to have to be programmed very loud in order to help at all. I am excited and curious about them. I am sure that eventually it will become second nature to put them in, take care of them and try to keep them in a very wiggly little baby's ear.
Here are some images of the process we went through, first a little piece of foam with a string attached is inserted into his ear. He didn't like it very much, but was such a good baby about it all. Then a silicon was injected into his ear and allowed to dry.
Wow. The technology is amazing. And he truly was a good baby thru it all. I am glad that you are telling your story. It is a wonderful story of love & hope.
ReplyDeleteA friend forwarded me the link to your blog. I am also here in Boise, and my 8-month old daughter has moderate hearing loss in both ears. Your first post describing Calvin's diagnosis at the Elks was so familiar to me - exactly as I experienced that day with my daughter 8 months ago. I also have a 2 year old with health issues, and so can empathize with your "why us, why again?" thoughts. I'm sorry you have to deal with this. I've listed some of my favorite resources for hearing loss on my blog. Also- there is currently a free, biweekly famly ASL, sponsored by IESDB, for families with young children with hearing loss. Not only is the teacher and ASL instruction wonderful, but the comraderie with other families with deaf and HOH children has been incredible for us. Feel free to email me: riverbio(at)yah.oo.com. -Claire
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